From what I’ve seen across social media, I know I’m not alone in the “post-holiday, returning to managing health” blues. While much of the world jumps back into a work and school routine, I’m left after the holidays to pick up the pieces of my health, managing flared symptoms and resuming my treatment protocol. Currently, my primary focus is improving my health so that I can go to back work or school again. But right now, much of my day-to-day is consumed by rest, pain management, doctors’ appointments and rallying low energy levels to complete basic tasks and activities.
This “getting back to my health” effort has been challenging both physically and psychologically. I struggle to let go of comparison as my friends return to “the grind” of work after the holiday break. Sometimes I desperately wish I could leave my body in bed and go engage in a normal 9-5 day like so many of my peers. In these moments, I try my best to remind myself that there is no use in imagining anything other than what is, and what is right now consists of my health being a full time job.
The holidays this year were a total marathon for me; filled with travel, family events, deep grief, an emotional funeral and other activities that demanded my body function way past its typical capabilities. Although I was careful to pull back where I could and advocate for my needs, the simple fact was, that for a few weeks, I maintained a completely unsustainable schedule with my current health status.
In order to show up in the way that I did, I pushed through increased pain levels, loosened my vigilance around normal activity limits (often leaving me exhausted and emotional), took extra medication and had to use my “emergency” short course steroid taper. This type of “marathoning” is something I hardly ever do, as it’s incredibly taxing on many fronts. Although it allowed me to be present for things I regularly wouldn’t have the opportunity to do and helped to maintain a faster pace; in order to do so, I spent a lot of the time feeling as if i was desperately treading water, my head just barely hovering above the surface. Almost every night of our trip, I surrendered to floating in this bizarre holiday-flux-state, with ice on my eyes and “please help” medication on board.
Much of my daily routine went out the window, and what did become more “routine” was showing up the best I could for as many moments as I could, then stealing away into a dark bedroom once I hit the wall of unbearable pain or exhaustion. So many days of this in a row (twelve to be exact…with airline flights on each end) was incredibly draining, but also allowed me to participate more than I’m used to doing. Although this routine was temporary and untenable, it was a reminder of what used to feel “normal” for me. It was so tempting to push my boundaries to stay in those good moments a little bit longer and remember what it felt like to engage with life at a faster pace.
Since arriving home and shifting back to my regular routine, I’ve had to deal with increased pain, quieter activity, more time homebound and returning to my standard treatment plan. This means that instead of jumping to treat a migraine in the morning because I know there is an event later in the day that I need to attend, I’m having to again get used to sitting with pain; riding it out and using all of my non-pharmacological methods before reaching for medication.
These shifts back to my current “normal” have been more frustrating than I’d anticipated. As unsuitable as my holiday pace and plan was long-term, it was one that was much more “responsive” to pain. But now, in my everyday flow, pain is a part of my life and most days, something to soften around and work with, instead of trying to keep a lid on it at all costs.
So, as I return to my “grind”, I wanted to share my experience so that other health grinders can know that they are not alone. Instead of catching up with colleagues, we are left to catch up on our health (and I’m not sure about yours, but mine seems to have a lot of pent up rage and questions about wtf I’ve been up to for the past few weeks given these flares…). During this transition, I’m trying to treat my body and mind with extra compassion and love. Simply acknowledging that a transition is occurring has helped me to navigate this past week with more acceptance and ease.
Getting back into the “managing chronic migraine grind” isn’t easy, but it is my reality; and that’s not something that I can change or want to expend energy fighting. Being angry at what is happening ultimately only causes me more stress. When I’m swept up in frustration, I always remind myself of the Buddha quote, “holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; you are the one who gets burned”. And I sure don’t need any extra burning!
Instead of adding fuel to the fire by being angry about my symptoms, I’m putting my effort into feeding myself supportive thoughts and doing little things that I know add up to make a big difference in my day-to-day life. I am focusing on eating nourishing foods, hydrating well, medicating as infrequently as possible, meditating regularly, gently stretching, and taking an “activity + people break” for as long as I need to.
Each day I’m setting the intention to start 2019 from a positive and accepting place. This doesn’t necessarily mean my symptoms are doing the same (I had the pleasure of spending NYE with a rager migraine, Jan 1 getting an urgent care infusion and am still waiting for a baseline 24 hrs), but that isn’t something I have control over. What I do have control over is my mindset and engaging in behaviors that I know support my wellness goals.
Wishing you nothing but love and wellness in the year ahead, and whatever your “grind” is, I hope you treat yourself with compassion too as you transition from holiday mode back to your own personal norm
I share each step along my road to wellness and healing and hope that in doing so I can inspire you along your own path. Thank you so much for being here.
Thank you for sharing! I feel like I can relate to this article immensely. Christmas has been very hard with all the family& travels. I just had my third house guest leave and have to go out of town this weekend for a family thing.
Just to go I will have to take steroids to keep up with everyone ( it doesn’t always even help) I loved your photo of how befor you go out for a few hours you have to rest just to be able to attend a function. That is something I have to do as well. It is nice to know I’m not alone. I always feel like my health has been a full time job for the last year’s with chronic migraine. Thank you for taking the time to write about it. Every day I think about how I don’t have the freedom to do small tasks that used to be easy for me. I’m very happy person even though I struggle everyday, but I do get the blues thinking about losing that freedom. I used to be a very active energetic person and to lose that has been a struggle. Chronic pain is not much fun either. Of course I will continue to fight and will continue to search for cure or even just some type relief. Again thank you for sharing your story really inspires me and makes me feel connected to people that have a similar situation. Keep on writing ✍️ Bests, Nicole